“Isn’t it terrifying for a
young nurse like you to take care of a patient waiting for death to happen?” Gary asked. The sky
outside the unit was dark on that cold winter night. His lampshade created
shadows as I walked into his room. His
shortness of breathing progressed and I had the morphine elixir in my hand. That
question was one of the most difficult that I ever had and even up to this
date, it still strikes a chord in my heart.
Trained in the Philippines, I completed a Competency Assessment
Programme for Overseas Registered Nurses prior to my practice as a registered
nurse here in New Zealand.
Bringing along with me my acute nursing experience back home prior to my move
here, palliative care in a western world was a relatively foreign context. As
our education is patterned and based in the United States curriculum and with
our use of western books, the concept is introduced in nursing school but we
have no clinical exposure as palliative care treatment is very uncommon back
home. For most of us, it is out of the cultural sphere and the thought of
palliative care alone inevitably brought shivers down my spine.
When my clinical placement
was announced for the bridging course, I was lucky enough to have a choice. Our
course coordinator asked me to choose between a geriatric facility and a
hospice care unit for my clinical placement. Despite initial hesitations, I
chose the latter. On the personal level, I had that self-imposed obligation to
face that fear, to know about myself better. A new experience can be a great
learning curve. In my mind, this can be a golden opportunity for me to learn
about palliative care and more importantly, more about my job.
Here in New Zealand, most of the palliative
care patients are referred from rest homes, public and private hospitals. Generally,
they are not for resuscitation. An actual experience being exposed in
palliative care was new for me to grasp and personally, my mind was not that wide
open enough to entertain the concept in a broader sense. There is a big
cultural variation on how we view death and dying. In the Philippines, it
is common for most patients and family members to expect the health care team
to initiate all the possible life-saving measures to prolong life despite agony
and near-death. Most of them, if not, are for resuscitation and since
palliative care is uncommon, it is also oftentimes, grossly antagonized. If the
very morbid patients don’t die in the hospital, patients or family members
prefer for the patient to be sent home before they die, where family members can
take care of them and die in their care. In a Western context, quality life and pain-free
transition to the next journey takes precedence and palliative care is a widely-accepted
specialty.
That experience gave me an
idea how Westerners view death and dying, in comparison to how some Asian
countries view it. At first, it was a big crisis on my part as it was preloaded
in my thinking that health care is all about promoting life. With my
experience, with all the great support that I received from the whole team, I eventually realized that promoting life is
quite different from promoting quality of life. My latest experience prior
to my placement was in emergency care and the pace is whole lot different as
patients in emergency stay in the department for a shorter duration. In most
cases, we see people in the emergency getting well. In the hospice, you can see
how patients slowly die and your role is very important to aid them to have a
graceful transition, with comfort, respect and dignity.
Gary was a diplomatic middle-aged gentleman with cardiac
tumour with visceral thorax metastasis. He was in the unit for 2 weeks for
palliative care. A night before he died he talked with me about so many things,
asked me about my home country and I asked him questions just the same. When he
asked that question about my job, my mouth was suddenly controlled with the
pounding beating of my heart. Myriad of thoughts flashed into my mind. I went speechless for few seconds. I told him
it wasn't hard for me take care of people dying as I have embraced the idea of
caring people. It was life-changing as it has taught me to understand more
about life. Deep within me, I was emotionally shattered at the thought of
seeing people go. Few hours later, his shortness of breathing progressed more
than what it was and he was in painful agony. I sensed that for Gary, the end is near.
My preceptor rang the family
who were two hours away and I helped her in preparing cocktails of morphine and
midazolam for Gary.
He went to slumber and I saw him being freed from the struggle that I saw in
his eyes. At that time, I was emotionally struggling and it was a little
traumatic for me to testify. His phone beeped many times. With permission from
the immediate kin, my preceptor asked me if I could open the messages of
goodbyes and read them to Gary.
I went on to the patient’s side and read them loud enough for the patient to
hear while she held his hand and while being in control of the drugs. I felt
like shaking and was overwhelmed with sudden gush of emotions deep inside but I
forced to compose myself and be calm as much as I possibly could. All I wanted
was to cry while I read those messages of goodbyes from his family members and
friends. It was heart-hammering, yet life-changing. It was an experience fully
loaded with cathartic emotions, introspection and interpersonal adjustments. On
the brighter side, my understanding in palliative care broadened into a greater
perspective.
Admittedly, it wasn't an
easy process but I was wholly grateful. When I reported on duty the next day,
the patient was no longer in his room. I was sure he had a peaceful transition
from life. It made me realize even more
that it is not all about exploring the technicalities of nursing but significantly,
the interpersonal aspect as well, as both of them are equally important. As
what nursing theorist Hildegard Peplau stressed in her Theory of Interpersonal
Relations, the nurse-patient relationship is a “significant, therapeutic
interpersonal process” and the importance of nurses’ ability to understand
their own behaviour so they can help others identify perceived difficulties is
paramount in nursing care.
True indeed, for me it was a
great learning curve. The experience didn’t teach me about death. It taught me more
about life. It also made me to think deeper on why I become a nurse.
The name used
in the article is not the patient’s real name.
This is the original article of the same sort published in Kai Tiaki Nursing Journal, New Zealand, May 2014.
Well, who can relate but your partner in the CAP duty (which is me). I must admit its not always about the dying person, but the readiness of the family to accept the "process". Seeing a family member and travelling in the "journey" with the client proved to be so much heart breaking to see. Pain and agony, the thought of leaving your family are major things why pallative care came into fruition.THE DIGNITY OF A PERSON EVEN TO HIS LAST BREATH IS our responsibility as palliative care nurses. Its not a JOY TO SEE. SEEING THEM SLOWLY FADING IS THE SADDEST sight Ive ever seen and FELT IN MY LIFE.However, experienced nurse or not,it will always strike one's sensibility. Ive learned from this experience, to be a nurse with a a true "heart".I remember the unit head saying , "death is not ugly or bad", as nurses we have to provide them the last "memory "of joy before they leave us. The noblest thing and the sweetest thing we can provide is give them the importance and dignity they deserve. We have done the technicalities, the skills, the practice..BUT ONE LAST THING and the most important thing is that WE ARE still HUMAN, INNATE FOR US TO CARE and pay respect to those who have gone first before us. Indeed , each of us and also the families, have our own way of grieving and acceptance of end of life event.I can say MY EXPERIENCE IN THE HOSPICE IS UNPARALLELED compared to my previous ones.ThIS IS WHERE YOU BECOME THE BEST CHRISTIAN , THE BEST NURSE THAT YOU WOULD LIKE TO BE.YOU HAVE TURNED TO BE AN ADVOCATE OF THE FAMILY, AND ADVOCATE OF GOD............Thanks Junel, i thought you have forgotten that experience. Remember I sang to a dying kind man who have been telling he is leaving. Still feeling teary-eyed when i remember.
ReplyDeleteJoseph B, RN . Currently works in the High dementia unit of a big Jewish facility in Australia
Thanks Kuya Joseph. Although at first it was a very challenging experience for me, it was a very life-changing one. Keep going and all the very bests on all your endeavours.
ReplyDelete